If Will could talk, I am pretty sure he would be quoting Ozzy Osbourne right now...
"Mama, I'm comin' hooooooooooome!"
Wahoo, our little man comes home tomorrow! I am so excited I can hardly contain myself. After an initial diagnosis of HLHS and being told Will would require a series of open heart surgeries and would spend his first few months in the hospital, he is coming home just 25 days after his birth!
As of right now (because it's changed about a million times) his diagnosis is Shone's Syndrome with a hypoplastic (small) left ventricle. Other than possible heart caths, his future does not look like it will include any more heart surgeries. Since the day he was born, when his left ventricle was barely functioning, his heart has continued to improve. As of his latest echo (done on Tuesday) his left ventricle (though still small and mis-shapen) is functioning at an almost completely normal level! He is a little miracle! Thank you to everyone who prayed for Will and his heart. The prayers were definitely answered and we are so thankful!
Will will not be coming home with any equipment, but will be coming home with 6 different meds: Captopril, Digoxin, Lasix, Zantac, Potassium Chloride, & a multi-vitamin. The first 2 are his heart meds, the potassium is to counter-act some of the effects of the Lasix (a diuretic), and the Zantac is for his reflux. His nurse today made a great color coded schedule for his meds, so we can easily see what he gets and when he gets it. She also worked with a pharmacist and doctor to get him on a better med schedule. He was getting meds just about every hour round the clock, now he will get all but 2 at the same time and none of them need to be given in the middle of the night, thank goodness.
Now for the bad news (well bad for most of you). As of tomorrow, our family is officially on lockdown. My fellow preemie moms know what I'm talking about. We will not be going many places, especially where there will be lots of people (the one exception will be March for Babies because it's outside and Will can stay in his stroller and not be touched). We are also asking that you not ask to come see Will if you are or have recently been sick, if anyone in your family is or has recently been sick, or if a sick person has even looked at you funny in the last month (just kidding about that one). But seriously, we do not want to risk Will getting sick, at least not anytime soon (we realize he will eventually get exposed to germs). So our current visitors are going to be limited to family. I'm sure once summer is in full force we will venture out more and let more people meet Will, we really are very excited to show him off!
Tomorrow, I will try to post pictures of Will's homecoming. And you can all see pictures of him completely wire/tube free!