So after a crazy treatment week, I finally have a few minutes to let everyone know what's going on with my eyes. Last fall, when I was in TX, I was diagnosed with CAR (carcinoma associated retinopathy). Basically my body is producing a certain type of anti-body to try to fight my cancer and that same anti-body has decided to fight my eyes. CAR is very rare, my new retina specialist here says he may see a case once every 10 years or so, so he is working with DR S in TX to work on my treatment.
Until about a month ago, my eyes were stable, then I started noticing a dark grey cloud right in the center of my vision in my left eye. It got bad enough that I quit driving again (I couldn't see the speedometer when I was driving). I also started having problems reading, I had to take my glasses off to read anything and things had to be about 4 inches from my face. My vision over all was just getting worse too, so I mentioned it to Dr G and off to a retina specialist I went.
After consultations between Dr G, Dr S & Dr N (new eye doctor) a treatment was devised. I received a shot of cortisone in my left eye last Friday and I started IV treatments this past week. I had 3 days of IV steroids and 2 days of IV immunoglobulins (some special anti-body to fight my own body's anti-bodies). I'll keep getting the steroids and IGIV every 3 weeks for a not yet determined length of time. And I am scheduled to go back to the retina specialist and get a shot of cortisone in my right eye this next Friday.
This has been just another set back, but I am keeping my chin up because some part of the treatment is working. The cloud in my left eye is gone and I'm driving again, and I can read with my glasses on again! I've noticed a big improvement in just one week and am so glad I didn't just shrug it off as bad eyesight.
I will say that I did a lot of complaining this week. It was very uncharacteristic of me. I was not happy with 5 days of 4 hour or longer treatments, but I know how important they are and am glad its over. Next week I have chemo and am hoping it doesn't knock me down too much because I have been feeling amazing and would like to continue feeling this way!