Although we're still waiting on the results of my spinal tap from last week, yesterday at my appointment with Dr S I found out my eyes are stable. That means my vision is not getting worse right now and there's no rush to start a treatment. YAY!!! Some excellent news! Also the treatment Dr S was going to suggest for me right now was a once a week IV steroid and it just so happens that I get an IV steroid once a week before my chemo...perfect! She said that works out great.
It still looks like I do have CAR (carcinoma associated retinopathy), but they haven't been able to identify what antibody I have (my body produces antibodies to fight my tumors and they just happen to also fight my retinas). She actually thinks I may have a so far unidentified antibody. Some how it wouldn't surprise me if I have something no one else has ever had! I could be ground breaking...haha!
Thanks again for all the prayers and good thoughts! Love you all!